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Sunday, February 12, 2023

Cancer updates


Last year about all I wrote about was cancer. I realized this weekend that it’s been a long time since my last cancer treatment update (in early October). Part of what got me thinking about it is that twice this past week a colleague didn’t seem to recognize me. I wonder if it’s because my hair looks so different. 


My curly hair this morning

For a while I'd been posting regular selfies during my treatment, in part because I didn't have all that much else to do, and in part because I kind of wanted to track the visual changes, which, aside from the hair were relatively minor. After I finished chemo, my hair started growing back, but at first it was a lot whiter than when I'd last seen it. Now I think the new growth is darker, but I didn't trim the white, so it has kind of a frosted look. It grew back slower on top, which makes for some weird length, but the most unusual part is the chemo curls.

this, apparently highly toxic, soft pastel from my daughter's drawing kit is taunting me


Apparently chemo damages the hair follicle, twisting it, which results in curls. That’s the explanation I’ve found, but it raises questions for me about naturally curly hair. Regardless, the curls are pretty normal for folks who’ve had chemo. They last 6 months to a year but can last longer. As someone whose straight hair never held a curl before, I’m enjoying having natural curls and even though the length is all over the place (thanks to the hair delayed regrow the on top), I’ve decided to keep everything I’ve got and enjoy it as long as it lasts.

boing boing curls


The curls have just reached the point where they make little spirals, or, as I would have called it when I was a kid, “boing boing curls.” If you wish for “boing boing curls” as a kid, you might just get that wish fulfilled after chemo 30 some years later. I'm pretty sure that as a kid I would have specified long "boing boing curls," but, as chemo ended in April, I may be getting close to the end of that type of growth.

the sculpture (right) as I left it at Christmas


The fact that I'm most interested in the hair, and I've been writing almost exclusively about my students' work for months, now, probably tells you what you need to know about my health (boring is good). I have been done with “active” treatment since September. In January I had my last meeting with my radiology oncologist who seemed to think my radiated skin looked good. She officially "released" me from her care, surprising me because I didn’t realize I was still under her care. The only hiccup was that I complained about some joint pain and that worried her (which worried me).

the other sculpture that I left even less complete over Christmas


In January I had my first post-surgery mammogram and that came back clear (about which I am much chiller now than I was then--when they didn't call with the results the next day I called them and told them they had to tell me or I'd worry all weekend). I also had my last weekly lymphedema appointment at the end of January. Which means that in February, I have no scheduled medical appointments of any kind! This is the first month since August of 2021 when I haven't have a medical appointment (or lots) related to my breast cancer!

both sculptures finished (and trying to keep the cats out at this point)


I‘m not done with treatment or appointments. I’m on five years of a daily pill and a shot every three months to stop my hormones. I have more lymphedema check ups, but they're spaced farther apart. At the start of March I have a pair of appointments my new oncologist and to get blood work to make sure the hormone stuff isn't causing major trouble. (Just the normal trouble of hot flashes and all that unfun menopause stuff.) Though some of them are decidedly not fun, I think that the symptoms have been fairly manageable. I can work just fine, I'm sleeping fairly well and I’ve gotten back into a sort of exercise routine of running with my daughter and doing some video workouts. I even went to yoga twice this month. 

old work and new work before and after glazing/firing


Mostly I’ve been focused on teaching and union work. In December I started some sculptures in my home studio that took ages to finish, not least because I got COVID when I was visiting my brother’s family at Christmas. But I finally finished building them and they are ready to fire whenever I get around to loading a kiln. This weekend I finally glazed a batch of functional work from who knows when. And that's all I've got, because between the glazing and the union and the classes I've told myself I'll squeeze in some rest this weekend!


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